http://www.lungcanceralliance.org/involved/sign_the_petition.php
Thanks all.
Thursday, July 31, 2008
Ta Da!
Well, all I can say is I am happy that I will be off these steroids soon, so I am not all zitty like I am now...but it's crazy how quickly I have adapted to running around my house all baldy. It's really comfy!
Lucie is treating me like a parlor trick -- "Take off your fakey wig and show us your baldy head, mommy!" TO EVERYONE.
I am pretty happy with the wig as well -- taking it into Mickel for a little trimming..it's just the tiniest bit poofy and I would like at least a couple of funky layers...it's too stepford at the moment. But all in all, not too bad!
And boy, am I glad just to have done it and gotten it over with. Moving forward -- closer to chemo, closer to some nice cancer eradication!!
Wednesday, July 30, 2008
Ancient Persian Magic
Our friend Laya Ganion sent me a box of Persian Magic. I think, hands down, that is one of the coolest packages anyone can get. It involves a charm called a "chesm" that absorbs evil and negative energy from everyone who passes by it in the house (and it's really pretty), and also some great herbs called "Esfand" that I burn a pinch on the stove every so often.
She also sent me some great literature about it, and I tell you what Laya, I am a believer!
Onto the update -- finish brain radiation on Friday, hip radiation on Wednesday....and am starting to downsize my steroids (which will be great because even though they are giving me great energy and a positive outlook have also given me massive zits, and the worst calf leg pain of my life)
And then Matt and I have a meeting with Dr West to discuss the chemo plan on Monday...
I know it's weird to be ancy for Chemo...but I want to get some of this cancer GONE, please! Besides, we just bought the cutest orange leather recliner for me to rest in...and I'm ready to get into Firefly and some other great series (finally have time!).
Going wig shopping with Denise today. My hair is falling out in droves and it's super disgusting. Lucie is ready for me to be bald -- she thinks it's kind of funny....she wants me to get a big long Rapunzel wig...
Had a lovely lunch with my long time friend Peggy Giosso last week, which was fantastic -- she was up from California for the week-- AND, she hooked us up with her sister Anna, who is going to be my Lucie-nanny-pickup in the fall from KIndergarten! Hooray! That was worrisome for a bit, but now it is all handled and set. Big help, very well timed. Thanks Peg!
Alright, that's it for now. Love you all.
She also sent me some great literature about it, and I tell you what Laya, I am a believer!
Onto the update -- finish brain radiation on Friday, hip radiation on Wednesday....and am starting to downsize my steroids (which will be great because even though they are giving me great energy and a positive outlook have also given me massive zits, and the worst calf leg pain of my life)
And then Matt and I have a meeting with Dr West to discuss the chemo plan on Monday...
I know it's weird to be ancy for Chemo...but I want to get some of this cancer GONE, please! Besides, we just bought the cutest orange leather recliner for me to rest in...and I'm ready to get into Firefly and some other great series (finally have time!).
Going wig shopping with Denise today. My hair is falling out in droves and it's super disgusting. Lucie is ready for me to be bald -- she thinks it's kind of funny....she wants me to get a big long Rapunzel wig...
Had a lovely lunch with my long time friend Peggy Giosso last week, which was fantastic -- she was up from California for the week-- AND, she hooked us up with her sister Anna, who is going to be my Lucie-nanny-pickup in the fall from KIndergarten! Hooray! That was worrisome for a bit, but now it is all handled and set. Big help, very well timed. Thanks Peg!
Alright, that's it for now. Love you all.
Friday, July 25, 2008
Catching up
Jeezus having cancer is busy. Lots of appointments, lots of trips to the store to get all the crazy whole food concoctions that go into my daily smoothies..
Well, that plus my computer has been under visqueen because of the interior painting that's going on at our house, making it awkward to say the least.
But here's the catch up.
Radiation is finally making me a little tired. Still have hair, but really, I'm not so impressed with it anymore. Even though I am definitively not a hat and scarf person, my friend Julia rocked some great stuff out for me -- so great, in fact, that Lucie keeps stealing various hats and squirreling them away in her room.
I'm two thirds of the way done with radiation. End on the 6th. On the 5th, I am meeting with Dr. West to make "the chemo plan." Thank goodness. Let's get this feel like crap party started so we can have some results (besides just no brain tumors and hip tumors).
The steroids are still going strong and do a nice job of keeping me up...so the xanax has been pretty much shelved for the past couple of weeks...although there has definitely been need of ambien. The doctors are all assuring me it's for the best, and once we get through this to a certain point, we can deal with any addiction problems that might have occurred.
Straight from Swedish to Betty Ford...how glamorous my 40's are...
Next post is all about Persian Magic -- and how I got a box of it in the mail -- super cool!!
Well, that plus my computer has been under visqueen because of the interior painting that's going on at our house, making it awkward to say the least.
But here's the catch up.
Radiation is finally making me a little tired. Still have hair, but really, I'm not so impressed with it anymore. Even though I am definitively not a hat and scarf person, my friend Julia rocked some great stuff out for me -- so great, in fact, that Lucie keeps stealing various hats and squirreling them away in her room.
I'm two thirds of the way done with radiation. End on the 6th. On the 5th, I am meeting with Dr. West to make "the chemo plan." Thank goodness. Let's get this feel like crap party started so we can have some results (besides just no brain tumors and hip tumors).
The steroids are still going strong and do a nice job of keeping me up...so the xanax has been pretty much shelved for the past couple of weeks...although there has definitely been need of ambien. The doctors are all assuring me it's for the best, and once we get through this to a certain point, we can deal with any addiction problems that might have occurred.
Straight from Swedish to Betty Ford...how glamorous my 40's are...
Next post is all about Persian Magic -- and how I got a box of it in the mail -- super cool!!
Tuesday, July 22, 2008
Big Girl Panties....Wise Words
One of the best things that I have heard in the past three weeks is that, yes, this is going to be tough. And yes, this is really scary stuff. And that yes, it's okay to be monumentally freaked out, sometimes.
BUT. If I'm going to really beat this, "it's time to put on the big girl panties and not mess around." Courtesy of Aunt Vicki, who has always been a great mentor to me in so many ways. And as always, when she said that, made me crack up. Which is also very healing you know.
I think she's right. This is the most grownup struggle I have been through yet, and it's not about whining and being scared and not wanting it -- it's about doing what I can because I have to. Ditto for Matt. Maybe more for Matt, unfortunately.
Thanks to Dana for making the panties real...that cracked me up too.
Love you guys.
Friday, July 18, 2008
Hair Today, Gone Tomorrow
Okay, by all you all know I'm not the cleverest writer (esp as they keep zapping my brain cells and feeding me full of weird pills) so please excuse the headline of this post. Later (I am running late this am) I will post some pictures of my lovely new Posh Spice hairdo that Mickel, my lovely hairdresser and friend, gave me. Stay posted...
But more importantly, if you missed the post below the whiney one about The Dark Knight, please take a moment to read it, or just go to www. lungcanceralliance.org and support S.3187, the Lung Cancer Mortality Reduction Act. It's really easy to do from their site, just punch in your zipcode and you will get the people you need to contact.
I can't stress enough that since this bill will fund research NOW, and fast track things that have been languishing...that there is a VERY strong correlation between this bill passing and me living longer. Which I want to do. So please, if you do nothing else, please please do this for me.
Back with photos after radiation! See ya!
Oh, and I will send out an email, but Tuesday The Dark Knight is a GO. It will be hard to eat and gather before the 7pm show, but it gets out at 9:30 so we can go for afters can't we? We're not that old....
But more importantly, if you missed the post below the whiney one about The Dark Knight, please take a moment to read it, or just go to www. lungcanceralliance.org and support S.3187, the Lung Cancer Mortality Reduction Act. It's really easy to do from their site, just punch in your zipcode and you will get the people you need to contact.
I can't stress enough that since this bill will fund research NOW, and fast track things that have been languishing...that there is a VERY strong correlation between this bill passing and me living longer. Which I want to do. So please, if you do nothing else, please please do this for me.
Back with photos after radiation! See ya!
Oh, and I will send out an email, but Tuesday The Dark Knight is a GO. It will be hard to eat and gather before the 7pm show, but it gets out at 9:30 so we can go for afters can't we? We're not that old....
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